The association supports patients and families in their search for diagnosis and treatment of Hereditary Angioedema (HAE), through guidance and reliable information.
2010
Founded
630
Doctors in network
2059
HAE patients
5000+
Families supported
Stories from patients and families who are part of the Abranghe community.
"It took me 12 years to receive the correct diagnosis. When I found Abranghe, I finally found support and information that changed my quality of life."
Maria S.
Patient since 2015 — São Paulo, SP
"My daughter was diagnosed at age 8. Thanks to Abranghe's guidance, we were able to access treatment through Brazil's public health system (SUS) and she now leads a normal life."
Carlos R.
Father of patient — Belo Horizonte, MG
"Before the diagnosis, I went to the emergency room dozens of times thinking it was an allergy. Knowing that there is a community that understands what we go through makes all the difference."
Ana L.
Patient since 2018 — Curitiba, PR
Want to share your story? Click here and send us your account.
Chatbots trained with reliable HAE information. Ask questions anytime, in a simple and accessible way.
HAE information in accessible language
Ask about symptoms, attacks, available treatments, emergency guidance and more. Answers based on reliable sources.
Chat nowTechnical information and clinical guidelines
Access clinical protocols, diagnostic and treatment guidelines, ICD codes, and scientific literature on HAE. You can also submit PDFs to enrich the collection.
Access assistant10 multiple-choice questions with detailed explanations. How much do you know about Hereditary Angioedema?
It is a rare genetic disease that causes recurrent episodes of swelling in various parts of the body. Unlike allergies, it does not respond to antihistamines or corticosteroids.
Swelling of the hands, feet, face, genitals and airways; severe abdominal pain (abdominal attacks); redness with a geographic pattern on the skin. Attacks involving the face, neck or throat are medical emergencies.
There is no cure, but the disease can be managed. There are medications to treat acute attacks and for prevention (prophylaxis) of new attacks. Some are available through Brazil's public health system (SUS).
Through laboratory tests that measure the levels and function of the C1-Inhibitor (C1-INH) protein and Complement C4. Diagnosis is made by allergists, immunologists or specialists familiar with HAE.
Seek immediate medical attention, especially if the swelling is in the face, neck or throat. Inform the medical team that you have HAE and that treatment differs from allergic reactions. Always carry your emergency card.
The Brazilian Hereditary Angioedema Association, founded in 2010, is a nonprofit organization that supports patients and families in their search for diagnosis and treatment, through guidance and reliable information.
Start here: essential information about Abranghe, about HAE, patient guidance and official references.
For questions, guidance and referrals, reach out to Abranghe through official channels. In case of emergency, seek immediate medical attention.
abranghe@abranghe.org.br
Phone
(11) 2503-2542
(11) 97454-6118
For patients
Access the Patient Area for practical information and care pathways.
Access Patient AreaWorld conference organized by HAEi and ACARE — "Make a Difference".
Brazilian Hereditary Angioedema Study Group meeting.